Debate on Patient Advocacy Organizations

Patient advocacy groups play a role in the funding of research and, increasingly, conduct it themselves. There are concerns about the proper role of health care professionals, including researchers, as members of these groups. There is often a lack of trust, and sometimes a lack of respect, between patient advocacy groups and biomedical researchers. We will debate the question of whether patient advocacy groups should be more or less involved in biomedical research.

 

 

 

       
       
     

 

 

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